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Scottish Collaborative Optometry-Ophthalmology Network e-research (SCONe)

Population Size

75,982

People

Population Size statistic card

Years

2006 - 2024

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

Scotland

Geographic coverage statistic card

Lead time

Data only
Lead time statistic card

Summary

SCONe is a community-acquired retinal image research repository held in the Public Health Scotland National Safe Haven. It was created with the ambition of collecting, classifying, and curating these images (many of which pre-date disease diagnosis) to enable early identification of ocular, systemic and neurodegenerative disease by uncovering novel biomarkers, ultimately improving clinical outcomes.

https://clinical-sciences.ed.ac.uk/ophthalmology/scone

Documentation

SCONe contains retinal images captured by community optometrists collated from participating practices across Scotland.

As they are CHI linked within the Public Health Scotland National Safe Haven, they can be linked to other routinely collected datasets.

Dataset type

Health and disease, Imaging types

Dataset population size

75982

Associated media

https://informatics.bmj.com/content/32/1/e101236

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

75982

Count

11 Mar 2025

Number of scans per modality

Fundus photos

798207

Count

11 Mar 2025

Findings

Metadata about each image including date of capture, eye imaged, image resolution (small subset of images).

798207

Date, R/L, numeric

11 Mar 2025

Provenance

Purpose of dataset collection

Research cohort

Source of data extraction

Machine generated

Collection source setting

Community

Patient pathway description

Fundus images collected during routine eye appointments at participating optometrists. Currently a single extraction from each practice.

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Other

Version

1.0.0

Modified

11/03/2025

Distribution release date

01/09/2028

Coverage

Start date

01/01/2006

End date

31/12/2024

Time lag

Not applicable

Geographic coverage

Scotland

Maximum age range

150

Follow-up

Other

Accessibility

Language

en

Alignment with standardised data models

OTHER

Controlled vocabulary

OTHER

Format

tif, jpg, png, csv

Data Access Request

Dataset pipeline status

Not available

Access rights

In progress. We are currently developing a mechanism to facilitate external researcher access to the SCONe retinal image repository with our partners at Public Health Scotland, who manage the National Safe Haven trusted research environment. We are not yet able to put a timescale on when this route will open for applications.

Jurisdiction

UK

Data Controller

University of Edinburgh &amp NHS Lothian are data controller for the collected images as SCONe&#039s organisational sponsors.

Data Processor

Public Health Scotland is data processor of the SCONe images.

Dataset Types: Health and disease, Imaging types

Dataset Sub-types: Vision

Collection Sources: Community